Sarcoidosis Patients’ Association
Through its work, the Association aims to support people living with sarcoidosis and their families.
Unfortunately, after diagnosis, patients often have thousands of questions. In hospital they may not learn what sarcoidosis is, how to live with it, what to expect, how extensive the disease is or how severe it may be.
When faced with reduced opportunities in life, they also ask what rights to protection and social assistance they have.
We are here together to answer these questions and, by sharing experiences, contribute to a better understanding of the disease and of living with it.
The Association’s main objectives are:
- to raise public awareness of sarcoidosis;
- to educate patients and their families about the disease and how to live with it;
- to connect physicians in order to achieve earlier diagnosis, prevent complications in time and identify best-practice treatment protocols;
- to secure equal access to social rights for people living with sarcoidosis.
President of the Association,
Dino-Josip Ključarić, Master of Theology
Founding Assembly of the Sarcoidosis Patients’ Association:
Elena Taslak
Irena Žilić Ladić
Anita Kurelac
Jasna Novaković
Ante Kisić
Blanka Marunica, Vice-President
Dino-Josip Ključarić, President
Articles of Association
Sarcoidosis Patients’ Association — Croatia
Registration number: 21014924
Tax number: 04676739508
Head office:
Mramorni prilaz 8a
10040 Zagreb, Croatia
Tel.: +385 99 167 4555
Email: info@uos-sarkoidoza.hr
Sarcoidosis Patients’ Association — Croatia
Registration number: 21014924
Tax number: 04676739508
Head office:
Mramorni prilaz 8a
10040 Zagreb, Croatia
Tel.: +385 99 167 4555
Email: info@uos-sarkoidoza.hr
Dino-Josip Ključarić (born in 1981) is the founder and president of the Sarcoidosis Patients’ Association. After being diagnosed with sarcoidosis, he devoted himself systematically to researching the disease. Over several years, he spent more than 4,000 hours studying medical literature, clinical guidelines and the immunological mechanisms associated with sarcoidosis. He uses the results of this work to prepare educational materials for patients and to communicate with healthcare professionals.
Through the Association, he brought together approximately 1,200 people living with sarcoidosis from Croatia and the surrounding region, creating one of the largest organised sarcoidosis communities in south-eastern Europe. He developed an internal classification and terminology framework that helps patients understand the disease, including its immune processes, disease forms, differential diagnosis and models for assessing symptom severity. He also contributes to recommendations for patients concerning early recognition of symptoms, communication with doctors, specialist examinations and disease monitoring.
In cooperation with hospitals and specialists from different fields, he has participated in establishing triage processes aimed at recognising sarcoidosis earlier, identifying patients at high risk and directing them towards appropriate diagnostic protocols. He also works actively with state and community institutions in medicine, the media and social care, focusing on improving access to diagnosis, information and psychosocial support for people living with the disease.
In the public sphere, he publishes texts on medical and ethical questions, the sociological and phenomenological aspects of disease, healthcare systems and the social challenges faced by people with chronic illnesses. The materials he produces are used to educate patients and support people going through diagnostic or treatment processes.
He holds a Master’s degree in Theology, with a philosophical specialisation. He also works in the fields of electronics, electrical engineering, mechanics, music and visual arts. Professionally, he works in management and organisational development and contributes to professional publications concerning business processes and organisational management.
Through the work of the Sarcoidosis Patients’ Association, he focuses on developing educational materials, cross-sector cooperation and better coordination between patients, healthcare institutions and community organisations, with the aim of improving understanding of the disease and the quality of care for people living with it.